Tuesday, June 9, 2015

PHASE 1 - DAY 7

MARCH 11- This round will finish this afternoon. They're going to do another echo just to make sure the heart is still as it should be since chemo drugs can apparently affect it occasionally. It's always about keeping track of a lot of stuff.
Dr. Singh was in and had some good news --- albeit it very tentative. IF, big if, I get through this second round OK, they might send me home and continue outpatient with only needing to come into the hospital daily for blood work and tra...nsfusions as needed. You can. Pray specifically for that! Wow.
But, today is Wednesday and if all goes well, I will have a week of feeling very, very down starting likely tomorrow. I say, if all goes well; that means my counts need to come to zero. And, as Dr. Singh says, the bone marrow biopsy in another week is the real test that we depend on. We want to see none, zip, zero white blood cells... no bad guys. So obviously that's went I am down... my body is pretty weak. Then we watch my bone marrow start to rebuild Jedi Knight fighters... good guys....the right kind of White blood cells.
My WBC this morning was .6. It should be 4 to 11k. Hemoglobin = 9.1 --- not too bad ---which helps me feel better now but will go down for sure. Vitals are good.
Won't mean much but my protocol includes Cytarabine [they all call it ARA-C], Mixtoxantrone and Rasburicase plus the 2 pre-chemo drugs given at the same time.
Cheers for now.
---------------------------------------------
This is interesting. I'm in the bathroom getting human and discover the tops of the window sill and shower are covered in dust. Hmmm. Just like on one of our favorite FoodTV shows with Robert Irvine called Restaurant Impossible where he walks in a failing restaurant, wipes his hand around and finds dust/dirt all over. Well, so bad here... and this is a really nice, newer hospital, but I am allergic to dust and molds and not needing any more challenge than I have now. My observation is often that it's not the people --- who are wonderful for sure. --- it's the system and training. Hey, just like a week ago when they gave me another patients records when I went into the city for our meeting at Rush. Think that set off some HIPA alert bells, sure enough.

No comments:

Post a Comment