March 24
UPDATE 5pm - Dr. Mandal just came and talked to Dawn and I and brought great news: my bone marrow is clear of leukemia and most all cells are gone. So i have to complete of the program now with a week for my body to start producing red and white blood cells on its own. Then the week home followed by a week of follow-up chemo as part of the protocol. Then done. This is an answer to hundreds of prayers and encouragement from all of you. I am humbled.
DAY 19 - I do now have a wee bit more sense from Dr. Mandal where we're going. Some tests apparently came back with some good and some. intermediately good news. No bad news. I'll be here in Sherman for probably another week. If all my numbers look good, I'll go home for a week. Then I'll come back for another week of less intense chemo called consolidation chemo. I will not need a bone marrow transplant which is the ultimate cure, of course. He was talking fast and I was trying to cipher out the essential elements and will share those as we talk again tomorrow.
After walking 5 laps and feeling pretty good last night, they found that my hemoglobin had dropped back to 5.0 and platelets to 15 so I got another transfusion today. Bummer. But, it's just how things go.... not bad or good.
On a lighter note, you might wonder how nights are.
Since I still have IV's 24/7 I'm up to donate to the lemonade stand maybe 5 times a night. The nurses are in to change bags at least once and to fix the beeping machine at least once ---- when I can't. And, somebody is in to check vitals in the middle of the night. So there is no continuous sleep but, I actually get along pretty well and it doesn't bother me too much
Since I still have IV's 24/7 I'm up to donate to the lemonade stand maybe 5 times a night. The nurses are in to change bags at least once and to fix the beeping machine at least once ---- when I can't. And, somebody is in to check vitals in the middle of the night. So there is no continuous sleep but, I actually get along pretty well and it doesn't bother me too much
UPDATE 5pm - Dr. Mandal just came and talked to Dawn and I and brought great news: my bone marrow is clear of leukemia and most all cells are gone. So i have to complete of the program now with a week for my body to start producing red and white blood cells on its own. Then the week home followed by a week of follow-up chemo as part of the protocol. Then done. This is an answer to hundreds of prayers and encouragement from all of you. I am humbled.
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