Bob's Cancer Journey
This is a journal of my journey from the discovery of XML Leukemia in late February, 2015, to recovery and remission and ongoing treatments.
Saturday, December 5, 2015
Monday, October 19, 2015
OCTOBER 16
Dear Friends and Family,
I know it's been a while since I posted. It's partly because I did not meet with Dr. Singh for almost two weeks and because I was doing pretty well with nothing noteworthy to report. That's all good!
So let me catch you up regarding our appointment on Friday at 8:30 am:
I know it's been a while since I posted. It's partly because I did not meet with Dr. Singh for almost two weeks and because I was doing pretty well with nothing noteworthy to report. That's all good!
So let me catch you up regarding our appointment on Friday at 8:30 am:
- I had another bone marrow biopsy. This one is for a bench mark at this point in time.
- Look at the chart here! Pretty much as we expected at this point, my numbers are all in the green [normal] for the very first time since the end of February. That is an amazing witness to how well I am doing. We are so excited.
- For the first time since my 'journey' began, I am not taking any antibiotics or any other meds. They ended on Friday. Hooray again.
- Now I'll go monthly for labs. Probably that will be the routine for at least the near future.
- Did you see this that I wrote a while back? I asked Dr. Singh about it Friday. Of course, Dawn and I wanted some perspective on the future. And, the million dollar question that has no solid, definitive answer is, "What are my chances of leukemia coming back?" At this point I am in remission. That means there is no evidence of leukemia in my body. I don't have cancer. Dr. Singh said that a guess is 50/50. 50% chance it won't come back and 50% chance that it will. But he also said that those odds are about the same as anything happening...in life. Dawn and I are really pretty comfortable with those odds. Dawn said, I thought the odds might not be that good. If it comes back, we'll deal with it and we do have other options. Here's what I wrote:
Here are some things that I would like
you to know about cancer from my perspective.
1. The new normal is scary. I have now been through 4 rounds of
chemo and found that I don't always know what tomorrow will be like. So as hard
as I try to be optimistic and upbeat, the fact is, I don't always know what
tomorrow brings.
2. You can't catch cancer
from me.
3. It might be over but it
might not. At
this point, there is no evidence that I have leukemia. But I have had
additional rounds of chemotherapy to ensure that it does not return. However,
it can regardless of the fact that I've received the best treatment protocol
available.
4. Everything might not be
OK. I know that many in my family and many
friends want to say that they know that "everything will work out
perfectly." I prefer to think that way, too. However, I have learned that
it doesn't always happen that way. Nobody "knows" for sure. I still
choose to be positive every day.
5. Everyone's experience
with cancer is different.
I don't mind hearing the story of how your sister's cousin's father-in-law beat
a completely different kind of cancer. But, understand that it does not
necessarily apply to me.
6. Chemo brain is not just a
funny excuse.
Actually, chemo does have an effect on memory. So please be patient with me.
7. There is more to my life
than my cancer. Some
days I really do feel lousy. But, I can and do work most days and pursue many
other interests and activities even while I was in the hospital. So, I am still
pretty much the same person I always was and enjoy talking about the things we
enjoy and have in common.
8. Life with cancer is an
emotional roller-coaster.
So, yes, you might find me excited and optimistic one day and trying to hide
disappointment the next.
9. You are more important
that you might think. I treasure the
cards, phone calls, emails and Facebook comments from you more than you can
imagine. They often are just the boost I need when I am feeling a bit down or
sorry for myself.
10. Learn from me. I hope that one take-away is that you
live your life like tomorrow could be turned upside down by an accident, a
health crisis or even an event totally out of your control. But that does not
mean you can't live without joy, optimistism and thankfulness.
11. You can beat cancer. Yes, total remission and a long life is entirely possible.
That's why I cherish your encouragement.
By Bob Marcom 2015
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Now we are making plans to do things. I have started playing tennis again. I am so excited to be back on the courts. You have no idea. Exercising is really important to recovery and continued good health and tennis is just the ticket.
We are flying to Nashville for 4 day next month for just a visit with our friends. We loved living there and miss them and the city. We are heading up to Wisconsin this weekend for the first time in a very long time, too. Then we are considering organizing some kind of Marcom family reunion in Santa Barbara this summer; maybe a trip to the UK and a trip to meet some English friends in the south this summer. I am back to working pretty much as usual and getting back to all my meetings here. In fact, now I am out looking for just a bit more work. I like working as you know.
You all my been our rock and prayer warriors through out this year. We are great full and thankful for you! With our love, Bob and Dawn
Friday, October 2, 2015
OCTOBER REPORT
THE LAST 10 DAYS - You'll notice here that my numbers are still going up. Yippee! WBC is now normal and so are platelets. Dr. Singh said today that when I come back in 2 weeks, my hemoglobin will be normal too.
Here's the high points:
- This last week I have had pretty much a normal schedule: did photos at the tap dance show which Dawn was in, attended some meetings, worked on friends computers, attended Microsoft Windows 10 training at their office, went out to dinner with friends and watched the Packers beat KC on Monday night.
- My next appointment is in two weeks and Dr. Singh will do another bone marrow biopsy just for a baseline. He expects all to be fine. It's an interesting procedure as I've mentioned before.
- I have signed up for tennis! Yep, next Tuesday I go back to tennis lessons - 2 hours - at the Centegra Health Center again. I am so excited but I know that it will be slow going at first because I am still not quite normal energy wise.
- I've hardly gained any weight back so far. Oh well. It'll come.
- Tomorrow Dawn and I will do the 5K cancer walk here at Sun City and then go to friends for dinner. I need to figure out what we're having to night. Ha ha. I did take a chicken breast out of the freezer.
- Next week I have some Sun City business meetings and a new client meeting plus the usual stuff so I'll be busy which is good.
Bob
Thursday, September 24, 2015
WEDNESDAY
Wednesday - We know where we're going now.
Yesterday we had our now weekly --- it used to be 3 times a week --- labs done and visit with Dr. Singh. As you can see in the chart here, things are going very well. My own bone marrow is doing it's job and producing White Blood Cells, Hemoglobin and Platelets. The only one that is still a wee bit low is HGB but it's coming along so no worries.
How am I feeling? As I mentioned before, I tire fairly quickly but am pretty much going through the day normally. That just means I need to sit down more. I am aware that I need to walk some every day whether it's at home or at Walmart or to a meeting. We are planning out our fall schedule which will include some trips and I'm really hoping to get back to into tennis in another few weeks. But, I'm just listening to my body. Tennis will be a gradual thing after not playing and working those muscles for almost 8 months. It will be fun to see how much muscle memory is still working.
My next appointment is not until next Friday so I may or may not post something between now and then.
Thanks for always thinking about us and praying and emailing and calling,
Bob
Tuesday, September 22, 2015
THURSDAY TO MONDAY
Thursday to Monday
- "You look great."
- "How's it going?"
- "Are you going to have more chemo?"
- "How are you feeling?"
These are all questions I've had from my friends and family over the last week. So let me answer you guys.
- You look great - Thank you for the compliment! It's all relative, huh. I still need to gain 10 lbs. or more back. I've had two haircuts in the last few months but it's still quite shorter....shorter than you know me as having. Although, Dawn likes it short, so I might not let it get much longer.
- How's it going? - Oh, what do you say? It's actually going very well. Although life is definitely different and I do have a different perspective.
- Are you going to have more chemo? - That's a biggie. I am torn on this. Dr. Singh told Dawn and I last Wednesday that 4 rounds is it. I won't have any more. The question is, was that enough? Normally the protocol calls for 4 to 5. Only God knows that answer. But, Dawn and I are fine with that and understand better than ever before that life is both tenuous and precious. So, we'll live that way.
- How are you feeling? - All relative again, right? But, in general I'd say I'm at about 75% of the energy level I used to have. Now that does not mean I am dragging around all day. I am not. I am working at my computer a lot of every day. I even picked up another new consulting client the other day. But it does mean that I tire more quickly and take short rests during the day. Plus, it means that my body is telling me that I'm not quite ready to try playing tennis again yet. I know that when I do, I will have to ease into it. But, boy, am I anxious to get out there with my racket.
Here I am in my "Rodgers That" Packers t-shirt in front of a Piper Cherokee similar to one I used to own.
Now I'm only going for lab work and to see Dr. Singh once a week...which is good. And, I'm driving myself...double good. So tomorrow we'll see what my numbers look like. I know that because of the amount of chemo I've had, recovery will be slower than before. But I am honestly doing well, folks.
Love you all,
Bob
Thursday, September 17, 2015
TUESDAY - WEDNESDAY
TUESDAY-WEDNESDAY - I have 3 things to report to you this morning.
First, I had my usual lab-Dr. Singh appointment late yesterday. As you can see, my labs are decent: WBC is normal. HGB could be better and PLT are low but OK considering my situation. I did get a bag of blood and platelets a week ago but now my own body kicking in and the numbers will go up. I am feeling pretty good but not quite tennis-ready yet. I am driving myself so that's a big hip-hip-hooray.
Second, Dr. Singh related an interesting, almost funny story yesterday to Dawn and I. He said, "I was talking with Dr. Mandal [partner who I most often sees when in the hospital] and he said that Mr. Marcom is just a very interesting case. He said he'd never seen a patient with such low numbers look so good and be so optimistic." That made my day....my month. And, you see how crummy those numbers were on the table below.
Third, Dr. Singh said, "We are not going to do any more chemo. That's it." I think we will end up talking more about that. But, in many ways, this is great news. It means that I can get on with life, make real plans, look forward to getting back to tennis and some travel again, go to meetings and be with friends without worrying about whether I am neutropenic and feeling OK.
So, will I roar back? I'd like to but remember, Dawn forces me to be realistic so I might meow back and then roar next month.
All this is because of that three legged stool I wrote about: the best healthcare and doctors, Dawn and my attitudes and our spiritual values and believe in God's power in our lives.
Love you all,
Bob
Please read this if you haven't already.
First, I had my usual lab-Dr. Singh appointment late yesterday. As you can see, my labs are decent: WBC is normal. HGB could be better and PLT are low but OK considering my situation. I did get a bag of blood and platelets a week ago but now my own body kicking in and the numbers will go up. I am feeling pretty good but not quite tennis-ready yet. I am driving myself so that's a big hip-hip-hooray.
Second, Dr. Singh related an interesting, almost funny story yesterday to Dawn and I. He said, "I was talking with Dr. Mandal [partner who I most often sees when in the hospital] and he said that Mr. Marcom is just a very interesting case. He said he'd never seen a patient with such low numbers look so good and be so optimistic." That made my day....my month. And, you see how crummy those numbers were on the table below.
Third, Dr. Singh said, "We are not going to do any more chemo. That's it." I think we will end up talking more about that. But, in many ways, this is great news. It means that I can get on with life, make real plans, look forward to getting back to tennis and some travel again, go to meetings and be with friends without worrying about whether I am neutropenic and feeling OK.
So, will I roar back? I'd like to but remember, Dawn forces me to be realistic so I might meow back and then roar next month.
All this is because of that three legged stool I wrote about: the best healthcare and doctors, Dawn and my attitudes and our spiritual values and believe in God's power in our lives.
Love you all,
Bob
Please read this if you haven't already.
Sunday, September 13, 2015
SATURDAY - SUNDAY
SATURDAY - SUNDAY - These are recovery days, of course. So I expect nothing much to report. However, I have done some writing on the "Why I am writing the blog" tab on my website that I really, really want you to have a look at. You can comment there too and let me know what you think.
While you are there, have a look at a video I posted on the "Resources" tab. It's terrific and very short.
Otherwise, the Packers beat the Bears so life is good.
Love you all, Bob and Dawn
While you are there, have a look at a video I posted on the "Resources" tab. It's terrific and very short.
Otherwise, the Packers beat the Bears so life is good.
Love you all, Bob and Dawn
Friday, September 11, 2015
FRIDAY - IT FINALLY HAPPENED! We went to Dr. Singh's today as usual for labs and a chat. Vicki came in first with a huge smile and, "Boy, do I have great news for you!" Then Dr. Singh came in with another big smile.

My WBC's were 4.7 [anything above 4.0] is normal. My HGB [Hemoglobin, right?], was 9.1 [above 12.0 is normal but we are close] and PLT's [Platelets] were 103.....about 140 is normal but that's close enough. That's after seeing WBC's at 0.2 or 0.3 for weeks and Platelets as low as 7 to 17. Several things are happening. The neuprogen shots [got another today] are helping, the whole blood and Platelets on Wednesday helped and own body is waking up.
Right now I have no restrictions. But I will still take it easy, that's for sure. I need things to keep moving along.
To say that Dawn and I are overjoyed does not begin to describe how we feel. What's next? More chemo? No clue. Flip a coin. Dr. Singh will not likely talk about that for a while. And, not worried about anything else except just moving along right now. And, possibly getting back to tennis and traveling.
Looking forward to a haircut tomorrow, watching my granddaughter, Lily in the Miss Teen Wisconsin pageant on TV, and the Packer-Bears game on Sunday. Yes, this is Dr. Singh and me this morning. Two smiley guys. God is good to us. Thank you all.
Bob
* I am going to write more about this especially on my website which is here: http://bobsleukemiajourney.blogspot.com/.
Here's something to think about [not just about me at all]: The new normal is still a bit scary. I do not have any evidence of leukemia and haven't for many months, but any cancer can come back in 6 months or never.

My WBC's were 4.7 [anything above 4.0] is normal. My HGB [Hemoglobin, right?], was 9.1 [above 12.0 is normal but we are close] and PLT's [Platelets] were 103.....about 140 is normal but that's close enough. That's after seeing WBC's at 0.2 or 0.3 for weeks and Platelets as low as 7 to 17. Several things are happening. The neuprogen shots [got another today] are helping, the whole blood and Platelets on Wednesday helped and own body is waking up.
Right now I have no restrictions. But I will still take it easy, that's for sure. I need things to keep moving along.
To say that Dawn and I are overjoyed does not begin to describe how we feel. What's next? More chemo? No clue. Flip a coin. Dr. Singh will not likely talk about that for a while. And, not worried about anything else except just moving along right now. And, possibly getting back to tennis and traveling.
Looking forward to a haircut tomorrow, watching my granddaughter, Lily in the Miss Teen Wisconsin pageant on TV, and the Packer-Bears game on Sunday. Yes, this is Dr. Singh and me this morning. Two smiley guys. God is good to us. Thank you all.
Bob
* I am going to write more about this especially on my website which is here: http://bobsleukemiajourney.blogspot.com/.
Here's something to think about [not just about me at all]: The new normal is still a bit scary. I do not have any evidence of leukemia and haven't for many months, but any cancer can come back in 6 months or never.
Thursday, September 10, 2015
THURSDAY'S CHANGE OF VIEW
THURSDAY - Yeees! I was discharged today at about noon. So my view has now changed dramatically!
I was expecting it but, of course, it depended on my numbers. Everything was up and I am technically not neutropenic....but still am going to be very careful. I need to still recover.
Dawn picked me up, got me lunch and got me set up for some rest this afternoon...although I did sneak in some work at my workstation. She went back to work.
This afternoon it gave me a chance to reflect on what Dawn has been through since last Wednesday. Every day:
Off to get a neuprogen shot and labs and see Dr. Singh in the morning. I am guessing we'll be back in the routine of checking CBC's 3 times a week again for a while.
Thank you all,
Bob
I was expecting it but, of course, it depended on my numbers. Everything was up and I am technically not neutropenic....but still am going to be very careful. I need to still recover.
Dawn picked me up, got me lunch and got me set up for some rest this afternoon...although I did sneak in some work at my workstation. She went back to work.
This afternoon it gave me a chance to reflect on what Dawn has been through since last Wednesday. Every day:
- Up by 5:30am
- Figure out what she is going to take to me for lunch and dinner
- Go to check on her mom at either 7am or 5:30pm.
- 8am to about 8:45am, go the Sherman to see me.
- Go to work at the ophthalmology office which is her real job.
- 1pm - Bring me lunch from Panera or from what she made at home.
- 5pm - Go to moms or to the hospital. Heats up my dinner and sits with me until about 8pm.
- At home morning and night:
- Figure out menu's and cook for me and for mom and Gerry
- Does wash - I change at least my jockeys often and other stuff about every other day. I pee at least every hour 24/7 because of the fluids bag and sometimes have to rush to the bathroom to pee into my lemonade bottle...and kind of miss sometimes. Ha ha. I don't wear any hospital stuff in the hospital as you know.
- Water the many plants on the porch daily
- Check mail
- Go to tap class
- Get to bed by 10pm
Off to get a neuprogen shot and labs and see Dr. Singh in the morning. I am guessing we'll be back in the routine of checking CBC's 3 times a week again for a while.
Thank you all,
Bob
Wednesday, September 9, 2015
WEDNESDAY BROUGHT GOOD NEWS
Dr. Singh says that I'm better off neutropenic at home [home germs that my body already knows] than at the hospital with mystery germs. Although everyone is very careful. I wear a mask on laps and anyone coming into my room wears a mask, of course.
So with that, I know that your prayers have gotten me to this point successfully. And, I love you all, Bob
Oh...this is me and my pole outfitted for laps this afternoon.
Tuesday, September 8, 2015
TUESDAY REPORT
TUESDAY REPORT - Ditto. I wish it was really different. However, my WBC did go from .3 to .6 so that is most definitely a PTL. But .6 is heading in the right direction after being stalled out for days...even though it's still rather puny. My HGB is about the same. But my platelets dropped to 21. If they drop more, I'll get another platelet transfusion which is fine with me. Those bags drip pretty fast; although since I am connected to at least fluid 24/7, I guess it makes little difference. The doc dropped the IV today. I just don't need that antibiotic anymore but still on two others. So, ladies and gentleman, boys and girls, we will see what my 6:30am draw tomorrow brings. I am still hoping to get out Friday or Saturday. But I sure have no impact on that decision.
Sweet dreams to all.
Love, Bob
Sweet dreams to all.
Love, Bob
Sunday, September 6, 2015
SUNDAY - THE STORY OF THE PATIENT PATIENT
Oh, I forgot to tell you yesterday about my IV. So I noticed that the line in my left arm was a bit red and swollen all of a sudden. Yep, the needle was leaking under my skin. I kind of thought the nurse ---- not from this floor--- who put it in was less than expert; but, hey, whadda I know. So, it needed to be pulled and a new one put in. My nurse made three stabs [pokes or "you're going to feel a prick," in my right arm but could not hit a decent vein. Maybe no surprise because I am getting a bit beat up now in the arms. So she calls Crystal who just happened to be working on my floor yesterday ---who I know pretty well----and she got a line going in my left arm. Hooray, 4 tries was enough. But Crystal works down in the infusion center in the Cancer Center so I expected that she was much more experienced with hard [axx] cases like me.
Today I've got almost 2 miles in lap[s in, watched a nifty WWII flying movie on Amazon Prime, did a bit of work, and chatted with Dawn here for a couple hours. She will get to sleep at home tonight since her mom's caregiver is coming back from Chicago at 6 tonight after a short vacation.
I appreciate your comments and prayers so much. The first thing Dawn always asks is, "What did you write today and lemme look at the comments."
Hugs, Bob
SATURDAY
SATURDAY BUMMER
I am really feeling pretty decent...and got about a mile and a half in laps today. Does not sound like much but is good for Sherman hallways, I guess.
The good news is my temps are totally fine and most often in the low 96's. Am I still breathing? Yep! The discouraging news is that my numbers are still the pits with WBC at .3, PLT's at 35 and HGB at 8.6 (not a deal breaker). What we're watching now is ANC (Absolute Neutrofil Count) for those of you who care or understand. The ANC now becomes the composite get out of jail number. It's .3 and must be 1.0 to go home....absolutely. My oncologist was in and said not to worry, the numbers will be OK in a couple days. Yeah, I know. But does that make me less antsy-pantsy? Heck no. So you are just thankful to God for how good I am now and for patience. Lunch from Panera, Dawnie brought in dinner and the Badgers are playing Alabama in a few minutes. Then I'll take my Counting Sheep pill, wake up 5 times in the night to pee in the lemonade bottle and see what Sunday looks like. Hope you all have a super duper holiday weekend. Hugs, Bob
I am really feeling pretty decent...and got about a mile and a half in laps today. Does not sound like much but is good for Sherman hallways, I guess.
The good news is my temps are totally fine and most often in the low 96's. Am I still breathing? Yep! The discouraging news is that my numbers are still the pits with WBC at .3, PLT's at 35 and HGB at 8.6 (not a deal breaker). What we're watching now is ANC (Absolute Neutrofil Count) for those of you who care or understand. The ANC now becomes the composite get out of jail number. It's .3 and must be 1.0 to go home....absolutely. My oncologist was in and said not to worry, the numbers will be OK in a couple days. Yeah, I know. But does that make me less antsy-pantsy? Heck no. So you are just thankful to God for how good I am now and for patience. Lunch from Panera, Dawnie brought in dinner and the Badgers are playing Alabama in a few minutes. Then I'll take my Counting Sheep pill, wake up 5 times in the night to pee in the lemonade bottle and see what Sunday looks like. Hope you all have a super duper holiday weekend. Hugs, Bob
Friday, September 4, 2015
FRIDAY
FRIDAY - It was so uneventful that for the first time ever, none of my oncologists came to see me. Well, there's more to the story but it's fine. They would not have needed to do anything or change anything.
I am still cruising along on the antibiotics; and my mouth, while still quite ugly, is getting much better. But my legs are all kind of broken out with the red spots like measles which is related to the mouth sores and little bruises ---- no worries. They will go away.
I may venture to some soft food tonight for dinner from our friend, Susan. Dawn brought a 450 cal soup and a 270 cal green smoothie for lunch. Yum....need those cals.
Nancy, the hospital nutritionist always stops to see me to talk about hospital food and pick my brain about improvements; but she knows that for the most part, I only eat breakfast here. She's tryin'.
All day my temps have been in the 97's. Hooray for that. My platelets dropped from 75 to 53....but as some of you guys know, they don't last long and get used up. So hoping my bone marrow kicks in soon and starts making some of those bad boys.
White blood cells are really what I need now if I ever want to get out of here. They are still .2 ...which is bad. So, I'm looking forward to what it looks like in the morning. It would be nice to not spend another holiday here.
Otherwise, that's the report for tonight. My mother in law's caregiver is on vacation for 3 days so Dawn will spend most of the weekend with mom. It's good that we are close by and can help.
Be safe, happy and have a festive holiday,
Bob
I am still cruising along on the antibiotics; and my mouth, while still quite ugly, is getting much better. But my legs are all kind of broken out with the red spots like measles which is related to the mouth sores and little bruises ---- no worries. They will go away.
I may venture to some soft food tonight for dinner from our friend, Susan. Dawn brought a 450 cal soup and a 270 cal green smoothie for lunch. Yum....need those cals.
Nancy, the hospital nutritionist always stops to see me to talk about hospital food and pick my brain about improvements; but she knows that for the most part, I only eat breakfast here. She's tryin'.
All day my temps have been in the 97's. Hooray for that. My platelets dropped from 75 to 53....but as some of you guys know, they don't last long and get used up. So hoping my bone marrow kicks in soon and starts making some of those bad boys.
White blood cells are really what I need now if I ever want to get out of here. They are still .2 ...which is bad. So, I'm looking forward to what it looks like in the morning. It would be nice to not spend another holiday here.
Otherwise, that's the report for tonight. My mother in law's caregiver is on vacation for 3 days so Dawn will spend most of the weekend with mom. It's good that we are close by and can help.
Be safe, happy and have a festive holiday,
Bob
THURSDAY - Game Changer
THURSDAY was a game changer!
I woke up this morning only to fine that the blister sore in my mouth had tripled in size with my tongue about 70% covered in painfulness. Could not eat or talk very well at all.
I woke up this morning only to fine that the blister sore in my mouth had tripled in size with my tongue about 70% covered in painfulness. Could not eat or talk very well at all.
So Dawn called Dr Singh at 7am and he made the arrangements for a platelet transfusion a couple hours later at Sherman. That went fine and I was done by about 11am. Then just afternoon at home things took a digger--- my temp has been normal ever since I got out of the hospital almost two weeks ago. Then, bam, it is 100.5 to 101.2. This is not good so Dawn called Dr. Singh and I was admitted back to Sherman an hour later.
Oh boy, not in my plan but we deal with it optimistically. Tonight I got a shot of nuprogen to boost my WBC count which is now only .2! But my platelets went from 18 to 75 tonight so the platelet transfusion is helping. HGB only dropped form 10 to 9 which is OK. The rest of the night I'll get a couple of antibiotic IV's.
They will culture my blood to see any signs of inspection. That is a big prayer need.
Guess that it for now,
Virtual hugs to all (I am neutropenic so not hugging or touching anything)
Bob
Guess that it for now,
Virtual hugs to all (I am neutropenic so not hugging or touching anything)
Bob
PS...
Bob Marcom Not to gross you out, but this was two days ago. Today it much worse but I think it may be starting to improve. At least I have normal temp this AM but likely here for another holiday!!

Wednesday, September 2, 2015
WEDNESDAY LABS
WEDNESDAY LABS
I did not know exactly what to expect today but was hoping my numbers would go up....at least a wee bit.
Well, well, well, my journey has not always been predictable. As much as I record data and make charts and try to cipher what will happen next, I am batting maybe 60%. When I woke up this morning my mouth was full of these nasty blood blister type sores, small bruises were developing on my face and I bleed at the least provocation.
No surprise when your platelets are in the teens. As I said yesterday, platelets thicken your blood. Yesterday they were 17 and today 18. This is what happens....especially the sores in your mouth first. So, it's hard to eat, sore and very uncomfortable but they should start going away in a week or so. My platelets were about 275 [normal] a couple weeks ago after I had just finished round 3 of chemo, by the way.
Second, my white blood cells which were .5 on Monday were .7 today. I am very, very neutropenic and wear a mask now if I am out anyplace....which I am not, except for doctor appointments for this week. They should be 10 times that.
So what's the bottom line? Dr. Singh says that my numbers are coming back and I'll be feeling much better by the middle of next week. Yippee.
However, yesterday I told Dawn that I'd bet that Dr. Singh was going to send me for a platelet transfusion today. Just a guess from my months of experience. And, yep, I'm heading to Sherman for a bag of platelets tomorrow. I'd guess I might have gotten them today but my doctor wanted some special irradiated platelets and the outpatient infusion center had to order them. My "travel department" friends are taking me at 11am and it only takes two hours. So that's good. I'll work on my online photography class while I am there.

I thought I might have Round 4 of chemo the 2nd week in September. Dr. Singh said, No. Maybe a bit later.
So here's a photo of my arms. Just drawing blood for labs bruises me up big time and bleeds a lot. At least they don't hurt like my mouth. Hugs for tonight, Bob.
I did not know exactly what to expect today but was hoping my numbers would go up....at least a wee bit.
Well, well, well, my journey has not always been predictable. As much as I record data and make charts and try to cipher what will happen next, I am batting maybe 60%. When I woke up this morning my mouth was full of these nasty blood blister type sores, small bruises were developing on my face and I bleed at the least provocation.
No surprise when your platelets are in the teens. As I said yesterday, platelets thicken your blood. Yesterday they were 17 and today 18. This is what happens....especially the sores in your mouth first. So, it's hard to eat, sore and very uncomfortable but they should start going away in a week or so. My platelets were about 275 [normal] a couple weeks ago after I had just finished round 3 of chemo, by the way.
Second, my white blood cells which were .5 on Monday were .7 today. I am very, very neutropenic and wear a mask now if I am out anyplace....which I am not, except for doctor appointments for this week. They should be 10 times that.
So what's the bottom line? Dr. Singh says that my numbers are coming back and I'll be feeling much better by the middle of next week. Yippee.
However, yesterday I told Dawn that I'd bet that Dr. Singh was going to send me for a platelet transfusion today. Just a guess from my months of experience. And, yep, I'm heading to Sherman for a bag of platelets tomorrow. I'd guess I might have gotten them today but my doctor wanted some special irradiated platelets and the outpatient infusion center had to order them. My "travel department" friends are taking me at 11am and it only takes two hours. So that's good. I'll work on my online photography class while I am there.
I thought I might have Round 4 of chemo the 2nd week in September. Dr. Singh said, No. Maybe a bit later.
So here's a photo of my arms. Just drawing blood for labs bruises me up big time and bleeds a lot. At least they don't hurt like my mouth. Hugs for tonight, Bob.
Monday, August 31, 2015
MONDAY RESULTS
MONDAY - Pretty much as expected my numbers have kind of tanked. First, White Blood Cells have gone from 1.3 on Friday to .5 today. Normal is 4 to 10. This is kind of normal after chemo but is a red flag that I have to be very careful. Hemoglobin is steady in the 10 range and that's where my energy is coming from now.
Yep, I am still having fairly normal days ---- working on business stuff and Sun City stuff. But, platelets are only 17. They are my army of cells cruising around in my blood stream to keep me from bleeding. They were about 275 only a couple weeks ago. So, we'll see what everything looks like on Wednesday. I would not be surprised to need a platelet transfusion. But what we are hoping for is that by Wednesday, my bone marrow is kicking back into high gear and building up my blood again. It may take several weeks, of course. But this is all part of the routine after chemo kicks my butt.
Everything is on one chart but WBC, HGB and Platelets each have their own range. So for now, I appreciate the prayers, positive thoughts and help that you give Dawn and I. Oh, anybody up for hauling me on Wednesday at about 1:45?
Bob
Everything is on one chart but WBC, HGB and Platelets each have their own range. So for now, I appreciate the prayers, positive thoughts and help that you give Dawn and I. Oh, anybody up for hauling me on Wednesday at about 1:45?
Bob
Friday, August 28, 2015
FRIDAY NIGHT REPORT
FRIDAY EVENING REPORT -
This morning I had a couple brief Sun City business kind of meetings. Worked on a bit of client stuff.
At 11 we headed to Dr. Singh's for labs as usual. This meeting explained a lot. Take a look the lab results chart here. It's not complete with all dates and results, but it does indicate how I've done in the past and, therefore, how I'm guessing I'll do over the next week or so. My hemoglobin has stayed fairly steady, platelets are OK but down a lot and White Blood Cells are dropping like a rock. Just as before. Do I feel it? Yeah a bit. But, for the most part my hemo is holding me up energy-wise. It's down but I'm not down and out at all.
As before, I am expecting that within a few more days, my WBC is going to tank. As it is now, I am neutropenic --- officially. That means I won't go to any places with crowds, we'll wash fruits and vegetables very thoroughly, not eat some fresh vegetables and just listen to my body. Ha ha...hard for me.
I expect, as you look at the lab results, that I'll go more down --- maybe really, really low for at least 2 or 3 days. And, then I'll start coming back up again. Dr. Singh says that we shouldn't pay a lot of attention to the numbers but to just pay attention to how I feel. Which means we just have to get through this phase with no fever or any other complications and all will be well. The biggie is no infections.
What's next? As I said Wednesday, the best outcome would be that I get through this round of chemo, recover and then am able to do the absolute final Round 4. Works for me. He just said, "Take it easy. Relax."
So, again, one of our best friends Mary Ann brings dinner over. Can you believe it? It was delicious and quite welcome. It really helps out Dawn. Of course, yesterday Susan made us lunch. Although it was kind of a reward for doing a yard walk at her house and helping her figure out what to do with some plants and landscaping. Love doing that.
This weekend is about laying low and watching the Packer game. I was hoping to get to church but that's not a good idea this weekend. It'll be interesting to see where my numbers are on Monday. So my prayer is to get through the next 3 or 4 days uneventfully...although I will likely be more tired.
Next week Dawn will get me to my Monday appointment and Mary Ann has volunteered as transportation manager for Friday. So I just need a lift for my 2:10 appointment on Wednesday. Although I have been driving with Dawn this week, I am guessing and planning that next week I won't as my numbers tank.
Love and hugs to you all,
Bob
PS: Remember, there are 3 kinds of men. The ones that learn by readin'. The few who learn by observation. The rest of them have to pee on the electric fence for themselves. Still hopin' I stay in one of the first two groups. And you?
This morning I had a couple brief Sun City business kind of meetings. Worked on a bit of client stuff.
At 11 we headed to Dr. Singh's for labs as usual. This meeting explained a lot. Take a look the lab results chart here. It's not complete with all dates and results, but it does indicate how I've done in the past and, therefore, how I'm guessing I'll do over the next week or so. My hemoglobin has stayed fairly steady, platelets are OK but down a lot and White Blood Cells are dropping like a rock. Just as before. Do I feel it? Yeah a bit. But, for the most part my hemo is holding me up energy-wise. It's down but I'm not down and out at all.
As before, I am expecting that within a few more days, my WBC is going to tank. As it is now, I am neutropenic --- officially. That means I won't go to any places with crowds, we'll wash fruits and vegetables very thoroughly, not eat some fresh vegetables and just listen to my body. Ha ha...hard for me.
I expect, as you look at the lab results, that I'll go more down --- maybe really, really low for at least 2 or 3 days. And, then I'll start coming back up again. Dr. Singh says that we shouldn't pay a lot of attention to the numbers but to just pay attention to how I feel. Which means we just have to get through this phase with no fever or any other complications and all will be well. The biggie is no infections.
What's next? As I said Wednesday, the best outcome would be that I get through this round of chemo, recover and then am able to do the absolute final Round 4. Works for me. He just said, "Take it easy. Relax."
This weekend is about laying low and watching the Packer game. I was hoping to get to church but that's not a good idea this weekend. It'll be interesting to see where my numbers are on Monday. So my prayer is to get through the next 3 or 4 days uneventfully...although I will likely be more tired.
Next week Dawn will get me to my Monday appointment and Mary Ann has volunteered as transportation manager for Friday. So I just need a lift for my 2:10 appointment on Wednesday. Although I have been driving with Dawn this week, I am guessing and planning that next week I won't as my numbers tank.
Love and hugs to you all,
Bob
PS: Remember, there are 3 kinds of men. The ones that learn by readin'. The few who learn by observation. The rest of them have to pee on the electric fence for themselves. Still hopin' I stay in one of the first two groups. And you?
Wednesday, August 26, 2015
WEDNESDAY - Good news - bad news
WEDNESDAY - Bad news is good news. OK, I'll explain that in a minute.
However, remember, they expect me to drop; although much more next week. We'll see. I've seen WBC's as low as .4 at home after chemo. Yeah, that means I am really, really careful around people. It's not a good place to be. I am hoping I don't dip that low, but it could happen.
WHAT'S NEXT? We talked about that with Dr. Singh today. This is the Bad News, Good News part.
Today - This morning I worked for a while; or, as long as Dawn let me which was a few hours. So good. In case, you're are interested or just curious, after lunch we...
- MONDAY NUMBERS
- WBC - 3.9: Low but OK.
- HGB - [Hemoglobin] - 10.1 - Only a wee bit low.
- PLT - [Platelets] - 133 - Only a wee bit on the low end.
- WEDNESDAY NUMBERS - Today
- WBC - 2.3 - Low
- HGB - 10.7 - Still OK.
- Platelets - 66 - Low
However, remember, they expect me to drop; although much more next week. We'll see. I've seen WBC's as low as .4 at home after chemo. Yeah, that means I am really, really careful around people. It's not a good place to be. I am hoping I don't dip that low, but it could happen.
WHAT'S NEXT? We talked about that with Dr. Singh today. This is the Bad News, Good News part.
- If I do very well, then Dr. Singh thinks that we should do a 4th round of chemo. Hey, I'm all over it. That's fine with me because I've done it successfully 4 times now, and this would give me the very best chance that leukemia will not return. Of course, with cancer and life, there's no guarantees but there are intelligent decisions and choices to make.
- If I do not do so well this round; meaning that I run into some trouble and end up back at Sherman for any reason [likely excluding a transfusion which could be needed but does not indicate a big problem], then Dr. Singh says, "No way will we do more chemo."
- When? We are kind of guessing but we think a 4th round would be in mid-September. We're prepared and good with that although we were kind of booking up activities for a lot of September. But my health comes first.
- A 4th round would almost 100% be the end of treatment. Sure, the ultimate is transplant but we're not seeing that as an option with Dr. Singh.
Today - This morning I worked for a while; or, as long as Dawn let me which was a few hours. So good. In case, you're are interested or just curious, after lunch we...
- Bought candy and flowers and delivered them to two terrific staff members that I worked with on committees who are leaving Sun City this week.
- Picked up cosmetics at our Mary Kay dealers house a couple minutes away. Yeah, we're both users.
- Got my labs done and met with Dr. Singh.
- Stopped at Dawn's office so she could check in and take care of a couple things.
- Went to the nursery to get a big mum, pots and other stuff.
- Stopped at the outlet center which is 5 minutes from our house and I got some new shoes at Sketchers and we looked for a shirt for Dawn's tap show [struck out so just ordered from Lands End.].
- Stopped at the market to get ice cream, pie and wine.
- Got home and watched half of an old cowboy movie starring James Garner. Will finish it tomorrow. Westerns are my favorite.
That's it, folks. Pray for our continued wisdom as we face more decisions and that God continues to bless us more than we deserve.
Bob
Tuesday, August 25, 2015
Brief Tuesday Thoughts
TUESDAY - We zipped around today running errands and taking lunch to mom and Gerry. Plus I stopped to visit a couple wonderful friends. And, then Jim shows up with dinner made by Sue. It can't be a better day. I am still feeling well....only maybe 3% tippy as I say sometimes.
Here's what Celine Dion said today about her husband, Rene, who is dying of cancer, "“You can have your shaking knees at the end, but when someone you love falls and needs help, it’s not time to cry. Afterwards, sure. But not yet.” That's not us, but it can be anybody at any time and it's the perfect attitude.
Hugs to you,
Bob
Here's what Celine Dion said today about her husband, Rene, who is dying of cancer, "“You can have your shaking knees at the end, but when someone you love falls and needs help, it’s not time to cry. Afterwards, sure. But not yet.” That's not us, but it can be anybody at any time and it's the perfect attitude.
Hugs to you,
Bob
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