WEDNESDAY - AUGUST 5 - WHAT HAPPENED TO BOB?
1. LAST FRIDAY - Dawn took off work and we went to two important doctor appointments. #1 was to see Dr. Singh. My numbers were really good so no worries there. But, the biggie is whether and when I have more chemo. Dr. Singh would like to and there are some options: do the 3rd round of Consolidation Chemo [6 days at the hospital] or maybe something called maintenance chemo [5 days for an hour as an outpatient every month...for not sure how long]. I take it there are other options. But Dr. Singh and Dr.Katz at Rush University are supposed to talk about it this week and we'll find out this Friday what they think.
So how do I feel? I am feeling really pretty good [you'll know why in a minute] but my energy is still really low. I notice it when I walk or do anything even minimally physical. I call it being 'tippy.' That's my best description. I told Dr. Singh I'm ready for what ever they think is needed but not quite yet. He understands completely. But it's complicated ---- I guess because of the infection which has set back the planned treatment schedule many weeks, they are concerned.
After Dr. Singh's we went down to the first floor and Adrienne pulled my midline and hugged me goodbye. I was done with the IV and all antibiotics. Hooray. They were certainly affecting my recovering and energy. So now, I am not taking any meds at all for the first time in maybe 6 months...except Florastor which is a probiotic since there are still antibiotics in my system.
My oxygen is improving nicely --- up to 95% now ---- and temps, BP and HR are good. PTL.
2. I WAS STUNNED - When Friday afternoon the doorbell rang and my sister and my favorite neice walked in from Spokane, Washington. Huh? What are you guys doing here? Yep, they just came to see me and they have had it all planned with Dawn for weeks. Actually, it took a while for the reality to set in and to understand how much they care about me.
Friday went all went over to the Muirhead Farm and bought 40 ears of their awesome supersweet corn and other veggies and took a turn around the prairie on the golf cart.
3. MORE STUNNED ON SATURDAY - I had an outing Saturday morning and went to the SC Computer Club meeting for the first time in 6 months. Just after I got home, the doorbell rings and my brother and sister in law are at the door! What the heck! Am I floored? You betcha. So now both my brother from Atlanta and sister are her to see me. It was both touching and awesome and a lift to my spirits. Plus on Saturday, I drove my car for the first time in six months. How about them apples? We had BBQ plates from a well know place tonight.
That night while we're eating on the porch, my brother, who's a real joker, comes out with these two hats equipped with hair....since I've lost most of mine. Although, now it's growng back. It created a real photo moment for the whole family and I'll probably sport them around Sun City.
4. SUNDAY - We all went to church at Willow Creek. I have not been able to go --- be around that many people --- since January. Sunday night we had fun looking at home movies of our trip to the UK and France last fall. Of course they all wanted to shop a bit at the outlet mall across from us. Marsha cooked her famous enchiladas and beans so we pigged out on those.
5. MONDAY - Dawn doesn't work so that was nice. To top off the day, our friend Susan made a fancy spread in her garden party area at the lovely 'estate' for all of us....so we topped of the day quite nicely.
In all this time, I did install Windows 10 on two computers. I can tell you that it was a piece of cake, took less than 2 hours and everything worked perfectly when done. I am fixing to do another computer this week I was so pleased about how well it went. Do I like W10? Yes! Much better than 8.0 or 8.1 and will be faster than 7. Call me if you have questions.
6. TUESDAY - Dawn sadly had to go back to work. I took the 3 of them over to the lodge where they had a nice swim. Then we had lunch at the restaurant here at Sun City. As they headed to their car and to the airport for home, he had a wonderful chance to hug and pray together in the parking lot. So sweet. I have to say that the 4 of them were the most low maintenance guys we've ever had. They bought loads of food ---- "oh, you like Spam?" So they buy 4, count'm four cans! ---- did dishes, cooked, pitched in with all kinds of things and put all their laundry in the machine on their way out.
Today I was back to work and I am a bit behind. Both David and Frode called me today and we had great chats. They are the gold standard definition of a lifelong friend. This Friday will be an important day at Dr. Singh's.
It is so special to have had this time with my family...they are prayer warrior leaders in getting me through my cancer journey. I hope the rest of your week is special! Bob
1. LAST FRIDAY - Dawn took off work and we went to two important doctor appointments. #1 was to see Dr. Singh. My numbers were really good so no worries there. But, the biggie is whether and when I have more chemo. Dr. Singh would like to and there are some options: do the 3rd round of Consolidation Chemo [6 days at the hospital] or maybe something called maintenance chemo [5 days for an hour as an outpatient every month...for not sure how long]. I take it there are other options. But Dr. Singh and Dr.Katz at Rush University are supposed to talk about it this week and we'll find out this Friday what they think. So how do I feel? I am feeling really pretty good [you'll know why in a minute] but my energy is still really low. I notice it when I walk or do anything even minimally physical. I call it being 'tippy.' That's my best description. I told Dr. Singh I'm ready for what ever they think is needed but not quite yet. He understands completely. But it's complicated ---- I guess because of the infection which has set back the planned treatment schedule many weeks, they are concerned.
After Dr. Singh's we went down to the first floor and Adrienne pulled my midline and hugged me goodbye. I was done with the IV and all antibiotics. Hooray. They were certainly affecting my recovering and energy. So now, I am not taking any meds at all for the first time in maybe 6 months...except Florastor which is a probiotic since there are still antibiotics in my system.
My oxygen is improving nicely --- up to 95% now ---- and temps, BP and HR are good. PTL.
2. I WAS STUNNED - When Friday afternoon the doorbell rang and my sister and my favorite neice walked in from Spokane, Washington. Huh? What are you guys doing here? Yep, they just came to see me and they have had it all planned with Dawn for weeks. Actually, it took a while for the reality to set in and to understand how much they care about me.
Friday went all went over to the Muirhead Farm and bought 40 ears of their awesome supersweet corn and other veggies and took a turn around the prairie on the golf cart.
3. MORE STUNNED ON SATURDAY - I had an outing Saturday morning and went to the SC Computer Club meeting for the first time in 6 months. Just after I got home, the doorbell rings and my brother and sister in law are at the door! What the heck! Am I floored? You betcha. So now both my brother from Atlanta and sister are her to see me. It was both touching and awesome and a lift to my spirits. Plus on Saturday, I drove my car for the first time in six months. How about them apples? We had BBQ plates from a well know place tonight.
That night while we're eating on the porch, my brother, who's a real joker, comes out with these two hats equipped with hair....since I've lost most of mine. Although, now it's growng back. It created a real photo moment for the whole family and I'll probably sport them around Sun City.
4. SUNDAY - We all went to church at Willow Creek. I have not been able to go --- be around that many people --- since January. Sunday night we had fun looking at home movies of our trip to the UK and France last fall. Of course they all wanted to shop a bit at the outlet mall across from us. Marsha cooked her famous enchiladas and beans so we pigged out on those.
5. MONDAY - Dawn doesn't work so that was nice. To top off the day, our friend Susan made a fancy spread in her garden party area at the lovely 'estate' for all of us....so we topped of the day quite nicely.
In all this time, I did install Windows 10 on two computers. I can tell you that it was a piece of cake, took less than 2 hours and everything worked perfectly when done. I am fixing to do another computer this week I was so pleased about how well it went. Do I like W10? Yes! Much better than 8.0 or 8.1 and will be faster than 7. Call me if you have questions.
6. TUESDAY - Dawn sadly had to go back to work. I took the 3 of them over to the lodge where they had a nice swim. Then we had lunch at the restaurant here at Sun City. As they headed to their car and to the airport for home, he had a wonderful chance to hug and pray together in the parking lot. So sweet. I have to say that the 4 of them were the most low maintenance guys we've ever had. They bought loads of food ---- "oh, you like Spam?" So they buy 4, count'm four cans! ---- did dishes, cooked, pitched in with all kinds of things and put all their laundry in the machine on their way out.
Today I was back to work and I am a bit behind. Both David and Frode called me today and we had great chats. They are the gold standard definition of a lifelong friend. This Friday will be an important day at Dr. Singh's.
It is so special to have had this time with my family...they are prayer warrior leaders in getting me through my cancer journey. I hope the rest of your week is special! Bob
No comments:
Post a Comment